Skydive in aid of epilepsy appeals

a BRAVE Blackwell women leapt from a plane in a fundraising bid to support her niece who suffers from epilepsy.

Lisa Evans made the jump last Saturday from an altitude of 10,000 feet over Bridlington to raise cash for The Daisy Garland - a UK charity which offers help and support to those affected by epilepsy.

Her three-year-old niece Ruby is currently on a special diet promoted by the charity which helps control her fits. Lisa said: “It was absolutely amazing! It was the best day of my life! I had never done anything like that before. Ruby was there and her mum - my sister-in-law - Laura Smith.

“My family were really overwhlemed by it - they didn’t think I was going to do it and neither did I!

“But I did and I would definitely do it again.”

Lisa (27), lives in Blackwell and works at Tibshelf Services. She said: “My partner Andrew Harrison came on the jump with me - he’s experienced sky diver. But I did the jump itself with Alex Flint.”

According to the National Society for Epilepsy, epilepsy affects at least 300,000 people in the UK - 60,000 of these people are children under the age of 16. Epilepsy affects one in every 100 children.

Ruby is currently on the ketogenic diet - a drug free diet which controls her fits. It is a doctor-supervised diet, which alters the body’s chemistry by simulating the metabolism. It is devised individually by a trained dietitian to fit the age, height, weight and metabolism of each child.

Lisa said: “We have seen a lot of difference in Ruby. She doesn’t have as many fits and they don’t last as long. She would have between 15 and 20 fits a day - now that’s down to under ten.

“They are trying to change her diet again to stop it all together. The Daisy Garland have done amazing work - they are putting dieticians in hospitals.

“At them moment there are only three dieticians - but they want to expand.”

She added: “They have been absolutely fantastic and we want to let people know that there is help out there.”

Lisa has raised £800 so far.”

If you would like to make a donation please visit the justgiving website.

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wendy evans

daughter Lisa (27), lives in Blackwell and work at Tibshelf Services

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blackwell

skydive this saturday in bridlington in aid of the daisy garland charity

work at tibshelf services

Set up in 2004 The Daisy Garland is a family-run, national, UK registered charity. It funds an increasing number of Ketogenic Dietitians in NHS hospitals across the UK and provide help with support equipment for use at home.

Over the years we have helped hundreds of families with active support and advice. We hope that you too will find what you are looking for here on our website.

A spokesperson for the charity said: “It is the most common serious neurological condition in the world and can affect anyone at any time in their life - it has no respect for age, sex, race or social class.

Seizures tend to develop in childhood or by late adolescence, but the likelihood of developing epilepsy rises again after the age of 65.

The ketogenic diet is a doctor-supervised diet, which alters the body’s chemistry by simulating the metabolism of a fasting body. It is a diet high in fat and low in protein and carbohydrate and is formulated to sustain the state of ketosis within the body.

Ketosis occurs when the body principally burns fat instead of the more common energy source, carbohydrate. Ketones (the ash or residue left after the fat is burned) are concentrated in the blood and inhibit seizures, although exactly how is unknown.

When a child starts the diet the ratio of fat to protein and carbohydrate combined are usually set at 4:1. Approximately 90% of total calories are derived from fat, usually in the form of butter, oil or cream.

Named after the ketone bodies excreted in the urine during ketosis, the ketogenic diet has been around since the 1920s. It was originally developed at the Mayo Clinic and Johns Hopkins University Hospital (Baltimore, USA) but unfortunately, as anticonvulsants drifted onto the market in the 1940s and 1950s, the ketogenic diet fell into disuse.

The diet is usually started in hospital, under the supervision of a neurologist, and is devised individually by a trained dietitian to fit the age, height, weight and metabolism of each child. Calculating the ketogenic diet is three parts science and one part art. The art part is a combination of common sense, empathy, and intuition. There is no promise that the diet will be easy initially, but if it works - if it works - it becomes not only tolerable, but absolutely amazing.